Pulmonary visit

Maya had her 6 month follow up with her pulmonologist today. We saw a new doctor this time, Dr Farber. He was pretty good actually and spent a lot of time with us. Since Maya was sick still with the cough, he went ahead and ordered a chest xray to rule out pneumonia and a blood gas test. Both came out fine.  We talked alot about her equipment and he made me feel better about everything. He basically said that if we need to suction her that badly that we should take her to the hospital (i.e. don't try so hard on our own to get her gunk out). He wants to see us back in a month and asked us to bring in the cough assist machine. He also ordered a swallow study to make sure Maya is eating is going okay and no risk of aspiration. Although this appointment went well, Charlie and I are still considering going to one of the SMA pulmonologists. There is one in New Jersey and one in Wisconsin. That may have to wait til next year.